Synapse operates under comprehensive governance policies. These policies delineate Synapse users’ rights and responsibilities. They also specify the rights and responsibilities of Sage Bionetworks and of the Synapse Access and Compliance Team (ACT).
The Synapse Terms and Conditions of Use establishes the use, disclaimers, and limitation of liability governing the use of Synapse. For example, this document states users must adhere to all applicable laws and regulations to protect the privacy of research participants’ data. By using Syanpse, you are agreeing to abide by each of these terms and conditions.
The Synapse Data Use Procedure describes the standard operating procedures for use of data within the Synapse. For example, it defines
Open Data and
Controlled Data. This policy clarifies the requirements for uploading data to Synapse, for example that human data must be de-identified according to HIPAA standards and all applicable privacy laws and regulations prior to being uploaded to Synapse. This policy also addresses the requirements for using
Open Data and
Controlled Data on Synapse. For example, to access some data sets Synapse users are required to show proof of review and approval of their data analysis plan by an ethics committee or IRB.
from casual visitors and
Registered Users. Personal information may include your name, email, or other information that
identifies you personally. We do not require you to register to visit the Synapse website. However, sections of the site and
access to some content will be granted only to
In order to become a
Awareness and Ethics Pledge
I commit myself to:
The Synapse Oath (part of the profile validation process) further reinforces these principles.
The Synapse Access and Compliance Team (ACT) monitors public activities on Synapse through periodic audits to assess compliance with the Synapse governance policies. For example, through these audits, the ACT verifies that public content shared on Synapse has appropriate
Conditions for Use. The ACT does not monitor activities or content placed in private
The ACT supports ethical use of Synapse, including adjudicating suspected unauthorized and/or unethical use of data, as well as “unsportsmanlike” behavior within the Synapse research commons. The ACT relies on the community of researchers and research participants for vigilance against unauthorized and/or unethical use of Synapse. Additionally, we rely on the community to hold itself to the highest standard of collegial behavior. People unable or unwilling to meet these standards may be expelled from Synapse.
You should not hesitate to get in touch with the ACT (firstname.lastname@example.org) if you have questions or suggestions about Synapse governance, including the policies, ethics, or rules for data sharing on Synapse.
It is your responsibility to contact the ACT (email@example.com) if: